MLD EL-PFDD Voice of the Patient Report

The Metachromatic Leukodystrophy (MLD) Voice of the Patient Report includes information from both the October 21st, 2022 Externally-Led Metachromatic Leukodystrophy Meeting (EL-PFDD) and the November 18th, 2022 Adjunct Scientific Meeting: Integration of the Patient Perspective into Therapy Development for MLD.

Also linked below are additional comments from MLD families, caregivers and patients.

MLD Voice of the Patient Report

Click here to download or scroll below to view online. Click the “explode” icon in the upper right to view in a separate window and/or print.

Additional Family, Caregiver & Patient Comments

Click here to download or scroll below to view online. Click the “explode” icon in the upper right to view in a separate window and/or print.